Volunteer with NIRDP
Together, We Make Rare Visible
At NIRDP (Northern Ireland Rare Disease Partnership), volunteers are changemakers. Whether you’re a student, working professional, retired, or someone with lived experience, there is a place for you. Your time, skills, and passion can help build a better, more inclusive world for people living with rare conditions.
Why Volunteer with NIRDP
Volunteering with NIRDP is about real-world impact—but it’s also about growth, connection, and community.
| Benefit | What It Means |
|---|---|
| Make a Difference | Support individuals and families affected by rare diseases in Northern Ireland |
| Develop Transferable Skills | Communication, leadership, teamwork, advocacy, digital media, research |
| Explore or Enhance Your Career | Great experience for those in health, policy, education, law, media, and more |
| Join a Supportive Network | Meet people with similar values and interests, and learn from lived experience |
| Flexible & Inclusive | We welcome volunteers of all ages, backgrounds, and skill levels—roles tailored to you |
Types of Volunteer Roles
Whether you want to get involved behind the scenes or on the front line, there’s something for everyone:
Awareness & Advocacy
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Help raise awareness about rare conditions across Northern Ireland through events, campaigns, and public engagement.
Research & Policy Development
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Support research projects, help map local services, or contribute to consultation responses that shape future healthcare and policy.
Marketing & Communications
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Write, designcontent for social media, blogs, or newsletters to help amplify the voices of the rare disease community.
Fundraising & Events
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Assist in organising or running fundraising events, online campaigns, and community outreach activities.
Admin, Project, & Technical Support
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Help with operations, data management, project planning, or website and digital support—vital work that powers our mission.
Peer Support & Listening
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With appropriate training, support others directly through signposting, listening, or community engagement roles.
For more information and detailed role descriptions register your interest today.